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In the span of a few months, the current US administration has waged an intense onslaught against diversity, equity, and inclusion (DEI), a set of principles meant to bolster fairness and promote participation of equity-deserving groups (1). This agenda has prompted several regressive responses. Private corporations that were previously publicly committed to DEI principles have abandoned their commitments. US government agencies have purged any mention of DEI in their public-facing materials. Even US universities that are presumably committed to the ideals of academic freedom and free speech have turned away from DEI.

Purging DEI has a direct impact on bioethics and clinical bioethicists. Bioethicists have a long history of advocating for social change. As documented by historians such as Robert Baker, some historical roots of bioethics are tied to the civil rights movements of the 1960s and 1970s. In Making Modern Medical Ethics, Baker states the following:

A Patient’s Bill of Rights was negotiated to assert the rights of welfare recipients and later those of all clinic and hospital patients in the context of a nonviolent populist insurrection against ableist, ageist, classist, racist, and sexist practices perpetrated by American hospitals that viewed “charity” through the lens of a white middle-class scientistic medical paternalist gaze

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Baker argues that traditional histories of bioethics focus on the role of formal commissions, think tanks, and reports. In his historical account, however, bioethics, like other social movements, was shaped by many unrecognized individuals who challenged and confronted prevailing norms and institutions. Building on this historical foundation, we argue that bioethicists, with inherently interdisciplinary approaches and backgrounds, are well positioned to promote DEI in the healthcare setting through the practice of clinical ethics. In the current cultural and political climate, bioethicists cannot remain silent while remaining true to the tenets of the field. Provisions in the American Society for Bioethics and Humanities (ASBH) Code of Ethics (3) and the lived experience of Canadian bioethicists offer relevant guidance. We argue that competence in clinical ethics obliges bioethicists to identify and seek to remove systemic barriers facing those whom clinical ethicists are privileged to serve. By adopting an intersectional approach to clinical bioethics, bioethicists become advocates for the promotion of just healthcare. This is when bioethicists are needed the most.

Clinical ethics facilitation may involve decisions affecting patients identifying as First Nations, Indigenous and/or other equity-deserving groups. Colonialization has harmed First Nations and Indigenous communities who lived in North America for millennia (4). In Canada, generations suffered in Residential Schools and understaffed and overcrowded “Indian hospitals.” (5) This may explain why those identifying as First Nations or Indigenous and their families are fearful and perhaps distrustful in their encounters with the Canadian healthcare system and Western medicine’s often paternalistic approach.

Despite this history, clinical bioethicists are witness to some of the most complex cases facing patients and their loved ones. Through their interdisciplinary training in mediation, facilitation, and ethical analysis, clinical bioethicists have a unique opportunity as members of the care team to ask probing questions in a case: how might systemic inequities affect this patient’s circumstances? What conscious or unconscious biases may be influencing the team’s perspectives? How should cultural or religious worldviews be considered? How might scarce healthcare resources be allocated so that those most in need are prioritized? The role of the clinical bioethicist is to ask these questions. This inquiry allows patients’ goals and values to be prioritized, and their voices amplified. In the process of asking these questions and by facilitating ethical dialogue, clinical bioethicists also serve as architects of moral space, opening opportunities for reflection by all stakeholders on the needs and values of patients.

To place patients’ wellbeing at the centre of clinical ethics consultation, bioethicists have a duty to identify, challenge, and promote DEI considerations. Members of the care team may be unaccustomed to consideration of DEI matters; some may not be able to see beyond the clinical facts or inherent biases in a case. In those situations, clinical bioethicists must highlight DEI, illuminating patterns facing equity-deserving groups experiencing systemic bias in provincial/state and/or federal systems.

ASBH offers guidance to bioethicists in its Code of Ethics (3). Highlighting tenets such as competence and a responsibility to promote justice, the Code offers scaffolding to clinical bioethicists in their practice. Competency in clinical ethics consultation means that uncertainties or conflicts regarding value-laden concerns are illuminated and addressed. Advocating for DEI is a way of promoting justice. Doing so requires an intersectional approach.

In an interview with the “Antiracism in Medicine” series of The Clinical Problem Solvers podcast, legal and sociology scholar Dorothy Roberts discussed the topic of intersectionality. She said:

we also have to recognize that race intersects with other statuses as well. It intersects with socioeconomic status, with education, with geography, with sexual orientation, with religion. We could go on and on. And all of those statuses I just mentioned, in our racial capitalist, anti-immigrant society, also affect gender. All of that. These are all hierarchies that intersect in our lives and they intersect in society

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In integrating DEI into clinical ethics, bioethicists should adopt an intersectional approach within their ethical analysis and throughout the facilitation process. Kimberlé Crenshaw defined “intersectionality” as the connection between two constructs such as race and gender (7), and exposed the limitations of “single-axis” thinking. Intersectionality examines the dynamics of difference and sameness, playing a major role in facilitating consideration of gender, race, and other axes of power (8). A commitment to intersectionality in clinical bioethics implies that care teams must consider different lenses; for instance, a white cis male will have a different lived experience than an Indigenous person who identifies as Two Spirit.[1]

Scholars such as Brunig and Salloch (10) have also called for the use of intersectionality in bioethics. Because of the interdisciplinary and multidisciplinary nature of the field, an intersectional bioethics approach is apropos. They state that “intersectional perspectives should complement the work of bioethicists to make structural discrimination visible, to make marginalized voices heard, and to advance work toward more self-reflection, as well as a diversification of bioethics itself.” (10) Bioethicists are equipped with multiple lenses, each sharpening and adding dimension to the DEI issues that often underlie and underpin clinical ethics cases. For example, end-of-life treatment options may favour individual autonomy, ignoring some cultures’ priority of family and community in decision making. Bioethicists’ training and positionality can prepare them to be attuned to issues that “single-axis thinking” misses.

Consider the term “framework” as it pertains to bioethics; clinical bioethicists rely on frameworks, at times, which can be understood as colonial ways of organizing concepts. Intersectional bioethics acknowledges worldviews beyond those of white colonizers; some cultures embrace ways of thinking and knowing that are not linear, that may occur in steps, akin to braiding, or weaving a tapestry.[2]

While clinical bioethicists are trained in and rely on Western biomedical ways of thinking about ethics, ethical exploration must not stop there. In other words, the four principles of autonomy, beneficence, non-maleficence, and justice may serve as a starting point but ought not end there. Western bioethics tends to prioritize personal autonomy, but patients’ cultures may conceive of autonomy differently, focusing instead on family or community wholeness (11). Other approaches provide additional lenses for intentional inquiry related to areas of DEI. For instance, principlism acknowledges the importance of justice and self-determination in the clinical encounter. A narrative approach enriches the understanding of justice as not just a theoretical concept but one that is embedded in a larger historical narrative that is unique and personal to the patient. A narrative approach recognizes both subjective and objective aspects. Feminist and care ethics include historically excluded groups and individuals. Used together, these various approaches can provide a richer, more nuanced, and holistic understanding of the intersectionality inherent in clinical ethics work.

An intersectional approach also offers opportunities to avoid or remedy challenges and pitfalls particular to the use of any single approach. For example, a consequentialist framework — which is often employed in public health bioethics — might ignore the aforementioned richness of the lives of particular persons. A virtue theoretical approach, while taking seriously particular persons, might lack the robust action-orientation that is often called for in clinical bioethics. A deontological framework may lend itself to bioethics-related policies but may leave out the humanity of the clinician and their own history and values, even if it attends to the explicit duties of clinicians toward patients. In considering and bringing together various ways of thinking and knowing, bioethicists can do their work best and, in so doing, make implicit arguments for DEI, which they ought to (also) make explicitly.

Current events suggest another rights movement lies ahead, furthering those of the 1960s and 1970s. In their clinical work, scope, and raison d’être, clinical bioethicists are well-suited to address DEI using both the practical and theoretical tools that are part of the bioethicists’ specific training. The conceptual approaches of casuistry, feminist bioethics, virtue ethics, and care ethics, for example, combined with the practical tools of narrative ethics and principlism, can and must “intersect” to ensure that DEI remains a central priority of clinical ethics. This approach highlights the ongoing need for diversity, equity, and inclusion, which is currently facing perilous pressure in the US.