Abstracts
Abstract
In response to the dearth of research for delivering women-centred support to women living with HIV, the Women’s HIV Empowerment Through Life Tools for Health (wHEALTH) intervention was developed. This project was grounded in a community-based research framework and aimed to respond to barriers of women living with HIV in accessing appropriate and meaningful social supports. Participants described the benefits of the peer case management intervention including support, mentorship, flexibility in which the intervention was delivered, and the notion of “moving forward” in one’s journey with HIV. Through education, awareness, and advocacy, peer case managers are important partners in addressing HIV-related stigma, and ensuring a multi-level approach to providing care and support to women living with HIV.
Keywords:
- Peer support,
- HIV,
- women,
- social support
Résumé
L’intervention wHEALTH a vu le jour pour pallier le peu de recherches sur la façon d’offrir un soutien adapté aux femmes séropositives. Elle s’est inscrite dans un cadre de recherche communautaire et visait à aplanir les difficultés qu’éprouvent les femmes séropositives à accéder à des initiatives de soutien sociales pertinentes et utiles. Les participantes ont décrit les avantages de la prise en charge de cas par des pairs, y compris le soutien et l’encadrement dont elles ont bénéficié ainsi que la souplesse avec laquelle l’intervention a été offerte, et elles ont abordé l’idée « d’aller de l’avant » dans la vie avec le VIH. En misant sur la formation et la sensibilisation, les gestionnaires de cas sont d’importants partenaires pour combattre la stigmatisation liée au VIH et pour assurer une approche multiniveau dans la prestation de soins et le soutien aux femmes séropositives.
Mots-clés :
- Soutien par les pairs,
- VIH,
- femmes,
- soutien social
Appendices
Bibliography
- Albrecht, G., & Peters, K. (1997). Peer intervention in case management practice. Journal of Case Management, 6(2), 43-50.
- Austin, C., & McLelland, R. (1994). Case management in human services: Reflections on public policy. Journal of Case Management, 6, 119-128.
- Boyd, M. R, Moneyham, L., Murdaugh, C., Philips, K. D, Tavakoli, A., Jackwon, K., Jackson, N., Vyavaharkar, M. (2005). A peer-based substance abuse intervention for HIV+ rural women: A pilot study. Archives of Psychiatric Nursing, 19(1), 10-17.
- Browne, G., Roberts, J., & Byrne, C. (2001). The costs and effects of addressing the needs of vulnerable populations: Results of 10 years of research. Canadian Journal of Nursing Research, 33, 65-76.
- Brun, C., & Rapp, R. (2001). Strengths-based case management: Invididual’s perspectives on strengths and the case manager relationship. Social Work, 46(3), 278-288.
- Campbell, H., Phaneuf, M., & Deane, K. (2004). Cancer peer support programs - do they work? Patient Education and Counseling, 55(1), 3-15.
- Canadian Aboriginal AIDS Network (CAAN). (2005). Aboriginal women living with HIV/AIDS: Care, treatment and support issues. Retrieved from http://pubs.cpha.ca/PDF/P43/24582.pdf.
- Carter, A. J., Bourgeois, S., O’Brien, N., Abelsohn, K., Tharao, W., Greene , . . . Loutfy, M. R., on behalf of the CHIWOS Research Team. (2013). Women-specific HIV/AIDS services: Identifying and defining the components of holistic service delivery for women living with HIV/AIDS. Journal of the International AIDS Society, 16, 17433.
- Carvalhal, A., Caswell, J., Ion, A., Kwaramba, G., & Mwalwanda, M. (2010). Strengths-based case management: A manual for HIV-positive women working as peer case managers. Unpublished.
- Cassel, J. B., & Ouellette, S. (1995). A Typology of AIDS Volunteers. AIDS Education and Prevention, 7, 80-90.
- Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into Practice, 39(3), 124-130.
- Fontana, A. & Frey, J. H. (2000). Chapter 24: The interview: From structured questions to negotiated text. In Y. S. Lincoln & N. K. Denzin, (Eds), Handbook of Qualitative Research, (2nd ed., pp. 645-672). Thousand Oaks, CA: Sage Publications.
- Greene, S., Tucker, R., Rourke, S. B., Monette, L., Koornstra, J., Sobota, M., . . . Watson, J. (2010). “Under My Umbrella”: The housing experiences of HIV positive parents who live with and care for their children in Ontario. Arch Womens Ment Health, 13, 223-232.
- Greene, S., Ion, A., Elston, D., Kwaramba, G., Smith, S., Loutfy, M. (2015). (M)othering with HIV: Resisting and Reconstructing Experiences of Health and Social Surveillance. In B. Hogeveen & J. Minaker (Eds.), Criminalized Mothers, Criminalizing Motherhood (pp.231-263). Toronto, ON: Demeter Press.
- Heckman, T., Somlai, A., Sikkema, K., Kelly, J., & Franzoi, S. (1997). Psychosocial predictors of life satisfaction among persons living with HIV infection and AIDS. Journal of Association of Nurses in AIDS Care, 8(5), 21-30.
- Helgeson, V., Cohen, S., Schultz, R., & Yasko, J. (1999). Education and peers discussion group interventions and adjustment to breast cancer. Archives General Psychiatry, 56, 340-347.
- Hilfinger-Messias, D. K., Moneyham, L., Vyavaharkar, M., Murdaugh, C., Phillips, K. D. (2009). Embodied work: Insider perspectives on the work of HIV/AIDS peer counselors. Health Care for Women International, 30, 570-592.
- Husbands, W., Browne, G., Caswell, J., Buck, K., Braybrook, D., Roberts, J., Gafni, A., Taylor, A. (2007). Case management community care for people living with HIV/AIDS (PLHAs). AIDS Care, 19(8), 1065-1072.
- Israel, B., Schultz, A., Parker, E., & Becker, A. (1998). Review of community-based reasearch: Assessing partnership approaches to improve public health. Annual Review of Public Health, 19, 173-202.
- Jacobs, R. J., & Kane, M. N. (2010). HIV-related stigma in midlife and older women. Social Work in Health Care, 49, 68-89.
- Kako, P. M., & Dubrosky, R. (2013). “You comfort yourself and believe in yourself”: Exploring lived experiences of stigma in HIV-positive Kenyan women. Issues in Mental Health Nursing, 34, 150-157.
- Kilbourne, A., Herndon, B., Andersen, R., Wenzel, S., & Gelberg, L. (2002). Psychiatric symptoms, health services, and HIV risk factors among homeless women. Journal of Health Care for the Poor and Underserved, 13(1), 49-65.
- Leininger, M. M. (1985). Ethnography and ethnonursing: Models and modes of qualitative data analysis. In M. M. Leininger (Ed.), Qualitative research methods in nursing (pp. 33-72). Orlando, FL: Grune & Stratton.
- Lekas, H., Siegel, K., & Schrimshaw, E. (2006). Continuities and discontinuities in the experiences of felt and enacted stigma among women with HIV/AIDS. Qualitative Health Research, 16(9), 1165-1190.
- Lichtenstein, B., Laska, M. K., & Clair, J. M. (2002). Chronic sorrow in the HIV-positive patient: Issues of race, gender, and social support. AIDS Patient Care & STDs, 16, 27–38.
- Logie, C., James, L., Tharao, W., & Loufty, M. (2011). HIV, gender, race, sexual orientation, and sex work: A qualitative study of intersectional stigma experienced by HIV-positive women in Ontario, Canada. PLoS Med 8(11): e1001124. doi:10.1371/journal.pmed.1001124.
- Logie, C., James, L., Tharao, W., Loutfy, M. (2013). Associations between HIV-related stigma, racial discrimination, gender discrmination, and depression among HIV-positive African, Caribbean, and Black Women in Ontario, Canada. AIDS Patient Care & STDs, 27(2), 114-122.
- London, A., LeBlanc, A., & Aneshensel, C. (1998). The integration of informal care, case management and community-based services for person with HIV/AIDS. AIDS Care, 10, 481-503.
- Loutfy, M. R., Logie, C. H., Zhang, Y., Blitz, S. L., Margolese, S. L., Tharao, W. E. , . . . Raboud, J. M. (2012). Gender and ethnicity differences in HIV-related stigma experienced by people living with HIV in Ontario, Canada. PLoS ONE, 1(12): e48168. doi:10.1371/journal.pone.0048168
- Loutfy, M. R., Sherr, L., Sonnenberg-Schwan, U., Walmsley, S. L., Johnson, M., d’Arminio Monforte, A., on behalf of Women for Positive Action. (2013). Caring for women living with HIV: Gaps in the evidence. Journal of the International AIDS Society, 16, 18509.
- Marchand, R. (2001). Gay men building local knowledge: community-based research in HIV prevention & health promotion. Retrieved from http://cbrc.net/sites/default/files/Gay%20Men%20Build%20Knowledge.pdf.
- Marino, P., Simoni, J. M., Silverstein, L. B. (2007). Peer support to promote medication adherence among people living with HIV/AIDS: The benefit to peers. Social Work in Health Care, 45(1), 67-80.
- Maticka-Tyndale, E., & Barnett, J. P. (2010). Peer-led interventions to reduce HIV risk of youth: A review. Evaluation and Program Planning, 33(2), 98–112.
- Melchoir, L. A., Huba, G. L., Gallagher, T., Jean-Louis, E., McDonald, S. S., Smereck, G. A., et al. (2001). Unmet needs in groups of traditionally underserved individuals with HIV/AIDS: Empirical models. Home Health Care Services Quarterly, 19(1-2), 29-51.
- Moxley, D. (1989). The practice of case management. Newbury Park, CA: Sage Publications.
- O’Brien, K. K., Bayoumi, A. M., Strike, C., Young, N. L., Davis, A. M. (2008). Exploring disability from the perspective of adults living with HIV/AIDS: Development of a conceptual framework. Health Qual Life Outcomes, 6, 76. doi:10.1186/1477-7525-6-76.
- Parish, M., Burry, C., & Pabst, M. (2003). Providing comprehensive case management to urban women with HIV/AIDS and their families. Affilia, 18(3), 13-24.
- Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science & Medicine, 57(1), 13-24.
- Passey, M., Sheldrake, M., Leitch, K., & Gilmore, V. (2007). Impact of case management on rual women’s quality of life and substance use. Rural and Remote Health, 7(710).
- Patel, R., Ratner, J., Gore-Felton, C., Kadzirange, G., Woelk, G., Katzenstein, D. (2012). HIV disclosure patterns, predictors, and psychosocial correlates among HIV positive women in Zimbabwe. AIDS Care, 24(3), 358-368.
- Peterson, J. L. (2010). The challenges of seeking and receiving support for women living with HIV. Health Communication, 25, 470–479.
- Public Health Agency of Canada (PHAC). (2009). HIV and AIDS in Canada: Surveilllance Report to December 31, 2008. Retrieved from http://www.phac-aspc.gc.ca/aids-sida/publication/survreport/2008/dec/index-eng.php.
- Sandelowski, M., & Barroso, J. (2003). Motherhood in the context of maternal HIV infection. Research in Nursing & Health, 26, 470-482.
- Sandelowski, M., Lambe, C., & Barroso, J. (2004). Stigma in HIV positive women. Journal of Nursing Scholarship, 36(2), 122-128.
- Scandlyn, J. (2000). When AIDS became a chronic disease. The Western Journal of Medicine, 172, 130-133.
- Selbin, J., & Del Monte, M. (1998). Waiting room of their own: The family care network as a model for providing gender-specific legal services to women with HIB. Duke Journal of Gender, Law & Policy, 5, 103-132.
- Simoni, J. M., Franks, J. C., Lehavot, K., Yard, S. S. (2011). Peer interventions to promote health: conceptual considerations. American Journal of Orthopsychiatry, 81(3), 351-359.
- Simoni, J. M., Nelson, K. M., Franks, J. C., Yard, S. S., Lehavot, K. (2011). Are peer interventions for HIV efficacious? A systematic review. AIDS Behav, 15, 1589-1595.
- Turan, J. M., Miller, S., Bukusi, E. A., Sande, J., & Cohen, C. R. (2008). HIV/AIDS and maternity care in Kenya: How fears of stigma and discrimination affect uptake and provision of labor and delivery services. AIDS Care, 20(8), 938-945. doi: 10.1080/09540120701767224
- U.S. President’s Emergency Plan for AIDS Relief (PEPFAR). (2009). Prevention of sexual transmission for people engaged in high risk activity. Washington, D.C.
- Vanable, P. A., Carey, M. P., Blair, D. C., Littlewood, R. A. (2006). Impact of HIV-related stigma on health behaviors and psychological adjustment among HIV-positive men and women. AIDS Behavior, 10, 473–482.
- Webel, A. R., Okonsky, J., Trompeta, J., Holzemer, W. L. (2010). A systematic review of the effectiveness of peer-based interventions on health-related behaviors in adults. American Journal of Public Health, 100(2), 247–253.
- Weick, A. (1983). A growth-task model of human development. Social Casework, 64, 131-137.
- Weick, A., & Pope, L. (1988). Knowing what’s best: A new look at self-determination. Social Casework, 69, 10-16.
- Wenzel, S., Tucker, J., Elliot, M., & Hambarsoomians, K. (2007). Sexual risk among impoverished women: Understanding the role of housing status. AIDS and Behavior, 11(Suppl 2), 9-20.
- Wood, S. A., & Tobias, C. (2004). Barriers to care and unmet needs for HIV-positive women caring for children: Perceptions of women and providers. Journal of HIV/AIDS & Social Services, 3(2), 47-65.