Abstracts
Résumé
L’étude présente les premières données concernant la scolarisation des élèves québécois ayant le SGT dans le contexte de la Politique de l’adaptation scolaire en lien avec la réforme de l’éducation. L’objectif est de présenter un portrait des manifestations comportementales, des troubles associés, de la classification en tant qu’élèves handicapés ou en difficulté d’adaptation ou d’apprentissage et des milieux éducatifs fréquentés par ces élèves. Un questionnaire d’enquête descriptive a été envoyé aux membres de l’Association québécoise du syndrome de la Tourette. Les résultats indiquent que 14 des 32 participants fréquentent des classes ordinaires. Le code de difficulté attribué pour les troubles relevant de la psychopathologie est néanmoins celui le plus souvent octroyé. La conclusion réfléchit aux interventions et au soutien apporté à ces élèves, en vue de leur réussite scolaire.
Mots-clés :
- syndrome de la Tourette,
- scolaire,
- comportement,
- concomitance,
- services éducatifs
Abstract
This study presents the first results regarding the schooling of children with Tourette syndrome in Quebec within the context of the education reform. The objective is to present data concerning symptoms, behaviors, comorbidities, classification of special education, and educational environment. A questionnaire was developed and sent out to the members of the Association québécoise du syndrome de la Tourette. Results show that 14 of 32 participants are not in special classrooms. Nevertheless, classification associated with psychopathological problems is the most frequent outcome. Conclusion reflects upon the type of support and interventions that may lead to school success.
Keywords:
- Tourette syndrome,
- school,
- behaviors,
- comorbidities,
- educational support
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Appendices
Bibliographie
- American Psychiatric Association (2003). DSM-IV-TR : manuel diagnostique et statistique des troubles mentaux (4e éd. rév.; traduit par J.-D. Guelfi & M.-A. Crocq). Paris, France: Masson10.3928/0048-5713-20010901-06 Google Scholar Search this bibliographic reference on Google Scholar
- Association québécoise du syndrome de la Tourette (2007). Rapport d’activités 2006. Récupéré de http://www.aqst.com/html/10.1016/S0022-3999(02)00584-6 Google Scholar Search this bibliographic reference on Google Scholar
- Budman, C. L., & Feirman, L. (2001). The relationship of Tourette’s syndrome with its psychiatric comorbidities: Is there an overlap? Psychiatric Annals, 31, 541-548.10.3928/0048-5713-20010901-06 Google Scholar Search this bibliographic reference on Google Scholar
- Budman, C. L., Rockmore, L., Stokes, J., & Sossin, M. (2003). Clinical phenomenology of episodic rage in children with Tourette syndrome. Journal of Psychosomatic Research, 55, 59-65. doi: 10.1016/S0022-3999(02)00584-610.1016/S0022-3999(02)00584-6 Google Scholar Search this bibliographic reference on Google Scholar
- Braden, J. S., DiMarino-Linnen, E., & Good, T. L. (2001). Schools, society, and school psychologists: History and future directions. Journal of School Psychology, 39, 205-219. doi: 10.1016/S0022-4405(01)00056-5 10.1016/S0022-4405(01)00056-5 Google Scholar Search this bibliographic reference on Google Scholar
- Brand, N., Geenen, R., Oudenhoven, M., Lindenborn, B., van der Ree, A., Cohen-Kettenis, P., & Buitelaar, J. K. (2002). Brief report: Cognitive functioning in children with Tourette’s syndrome with and without comorbid ADHD. Journal of Pediatric Psychology, 27, 203-208. doi: 10.1093/jpepsy/27.2.203 10.1093/jpepsy/27.2.203 Google Scholar Search this bibliographic reference on Google Scholar
- Carter, A. S., O’Donnell, D. A., Schultz, R. T., Scahill, L., Leckman, J. F., & Pauls, D. L. (2000). Social and emotional adjustment in children affected with Gilles de la Tourette’s syndrome: Associations with ADHD and family functioning. Journal of Child Psychology and Psychiatry and Allied Disciplines, 41, 215-223. doi: 10.1017/S002196309900515610.1017/S0021963099005156 Google Scholar Search this bibliographic reference on Google Scholar
- Coffey, B. J., Biederman, J., Geller, D. A., Spencer, T., Park, K. S., Shapiro, S. J., & Garfield, S. B. (2000). The course of Tourette’s disorder: A literature review. Harvard Review of Psychiatry, 8, 192-198. doi: 10.1093/hrp/8.4.19210.1093/hrp/8.4.192 Google Scholar Search this bibliographic reference on Google Scholar
- Cohen, D. J., Bruun, R. D., & Leckman, J. F. (1988). Tourette’s syndrome and tic disorders: Clinical understanding and treatment. New York: John Wiley & Sons.10.1017/S0012162200000839 Google Scholar Search this bibliographic reference on Google Scholar
- Conseil supérieur de l’éducation (2002). Rapport annuel sur l’état et les besoins de l’éducation 2001-2002. La gouverne de l’éducation : priorités pour les prochaines années. Gouvernement du Québec, Canada. Récupéré de http://www.cse.gouv.qc.ca10.1080/03033910.2000.10558241 Google Scholar Search this bibliographic reference on Google Scholar
- COPEX (1976). Rapport du comité provincial de l’enfance inadaptée : l’éducation de l’enfance en difficulté d’adaptation et d’apprentissage au Québec. Québec, Canada : Gouvernement du Québec.10.1097/00004583-198403000-00006 Google Scholar Search this bibliographic reference on Google Scholar
- Cormier, M. (1998). Le syndrome de Gilles de la Tourette : une étude de la situation pédagogique actuelle. (Mémoire de maîtrise). Université du Québec à Montréal, Montréal, Canada.10.1111/1469-7610.00802 Google Scholar Search this bibliographic reference on Google Scholar
- Costello, E. J., Angold, A., Burns, B. J., Stangl, D. K., Tweed, D. L., Erkanli, A., & Worthman, C. M. (1996). The Great Smoky Mountains Study of youth: Goals, design, methods, and the prevalence of DSM-III-R disorders. Archives of General Psychiatry, 53, 1129-1136. doi: 10.1001/archpsyc.1996.0183012006701210.1001/archpsyc.1996.01830120067012 Google Scholar Search this bibliographic reference on Google Scholar
- Dooley, J. M., Brna, P. M., & Gordon, K. E. (1999). Parent perceptions of symptom severity in Tourette’s syndrome. Archives of Disease in Childhood, 81, 440-441.10.1136/adc.81.5.440 Google Scholar Search this bibliographic reference on Google Scholar
- Freeman, R. D., Fast, D. K., Burd, L., Kerbeshian, J., Robertson, M. M., & Sandor, P. (2000). An international perspective on Tourette syndrome: Selected findings from 3500 cases in 22 countries. Developmental Medicine and Child Neurology, 42, 436-447. doi: 10.1017/S0012162200000839 10.1017/S0012162200000839 Google Scholar Search this bibliographic reference on Google Scholar
- Hickey, T., & Wilson, L. (2000). Tourette syndrome: Symptom severity, anxiety, depression, stress, social support and ways of coping. The Irish Journal of Psychology, 21, 78-87.10.1080/03033910.2000.10558241 Google Scholar Search this bibliographic reference on Google Scholar
- Harcherik, D. F., Leckman, J. F., Detlor, J., & Cohen, D. J. (1984). A new instrument for clinical studies of Tourette’s syndrome. Journal of the American Academy of Child and Adolescent Psychiatry, 23, 153-160. doi: 10.1097/00004583-198403000-00006 10.1097/00004583-198403000-00006 Google Scholar Search this bibliographic reference on Google Scholar
- Hornsey, H., Banerjee, S., Zeitlin, H., & Robertson, M. M. (2001). The prevalence of Tourette syndrome in 13-14-year-olds in mainstream schools. Journal of Child Psychology and Psychiatry and Allied Disciplines, 42, 1035-1039. doi: 10.1111/1469-7610.0080210.1111/1469-7610.00802 Google Scholar Search this bibliographic reference on Google Scholar
- Jankovic, J. (1997). Phenomenology and classification of tics. Neurologic Clinics of North America, 15, 267-275. doi: 10.1016/S0733-8619(05)70311-X10.1016/S0733-8619(05)70311-X Google Scholar Search this bibliographic reference on Google Scholar
- Kadesjö, B., & Gillberg, C. (2000). Tourette’s disorder: Epidemiology and comorbidity in primary school children. Journal of the American Academy of Child and Adolescent Psychiatry, 39, 548-550. doi: 10.1097/00004583-200005000-0000710.1097/00004583-200005000-00007 Google Scholar Search this bibliographic reference on Google Scholar
- Kurlan, R., McDermott, M. P., Deeley, C., Como, P. G., Brower, C., Eapen, V., … Miller, B. (2001). Prevalence of tics in schoolchildren and association with placement in special education. Neurology, 57, 1383-1388.10.1212/WNL.57.8.1383 Google Scholar Search this bibliographic reference on Google Scholar
- Leckman, J. F., & Cohen, D. J. (1999). Tourette’s syndrome: Tics, obsessions, compulsions. Developmental Psychopathology and Clinical Care. New York: John Wiley & Sons.10.1212/01.WNL.0000086370.10186.7C Google Scholar Search this bibliographic reference on Google Scholar
- Leckman, J. F., Riddle, M. A., Hardin, M. T., Ort, S. I., Swartz, K. L., Stevenson, J., & Cohen, D. J. (1989). The Yale Global Tic Severity Scale: Initial testing of a clinician-rated scale of tic severity. Journal of the American Academy of Child and Adolescent Psychiatry, 28, 566-573. doi: 10.1097/00004583-198907000-0001510.1097/00004583-198907000-00015 Google Scholar Search this bibliographic reference on Google Scholar
- Leckman, J. F., Zhang, H., Vitale, A., Lahnin, F., Lynch, K., Bondi, C., … Peterson, B. S. (1998). Course of tic severity in Tourette syndrome: The first two decades. Pediatrics, 102, 14-19.10.1542/peds.102.1.14 Google Scholar Search this bibliographic reference on Google Scholar
- Leclerc, J., Forget, J., & O’Connor, K. (2008). Quand le corps fait à sa tête : le syndrome de Gilles de la Tourette. Québec, Canada: Éditions MultiMondes.10.1016/S0890-8567(09)66574-6 Google Scholar Search this bibliographic reference on Google Scholar
- Mason, A., Banerjee, S., Eapen, V., Zeitlin, H., & Robertson, M. M. (1998). The prevalence of Tourette syndrome in a mainstream school population. Developmental Medicine and Child Neurology, 40, 292-296.Google Scholar Search this bibliographic reference on Google Scholar
- Ministère de l’Éducation, du Loisir et du Sport (2007). L’organisation des services éducatifs aux élèves à risque et aux élèves handicapés ou en difficulté d’adaptation ou d’apprentissage. Québec, Canada: Gouvernement du Québec. Récupéré de http://www.mels.gouv.qc.caGoogle Scholar Search this bibliographic reference on Google Scholar
- Ministère de l’Éducation du Québec (1999). Une école adaptée à tous ses élèves. Prendre le virage du succès. Politique de l’adaptation scolaire. Québec, Canada: Gouvernement du Québec. Récupéré de http://www.mels.gouv.qc.caGoogle Scholar Search this bibliographic reference on Google Scholar
- Ministère de l’Éducation du Québec (2000). Élèves handicapés ou élèves en difficulté d’adaptation ou d’apprentissage (EHDAA) : définitions. Québec, Canada: Gouvernement du Québec, direction de l’adaptation scolaire et des services complémentaires. Récupéré de http://www.mels.gouv.qc.caGoogle Scholar Search this bibliographic reference on Google Scholar
- Ministère de l’Éducation du Québec (2002). Les services éducatifs complémentaires : essentiels à la réussite. Québec, Canada: Gouvernement du Québec, direction de l’adaptation scolaire et des services complémentaires. Récupéré de http://www.mels.gouv.qc.caGoogle Scholar Search this bibliographic reference on Google Scholar
- Müller-Vahl, K. R., Berding, G., Brücke, T., Kolbe, H., Meyer, G. J., Hundeshagen, H., … & Emrich, H.M. (2000). Dopamine transporter binding in Gilles de la Tourette syndrome. Journal of Neurology, 247, 514-520.10.1007/PL00007806 Google Scholar Search this bibliographic reference on Google Scholar
- O’Connor, K. P. (2002). A cognitive-behavioral/psychophysiological model of tic disorders. Behaviour Research and Therapy, 40, 1113-1142. doi: 10.1016 /S0005-7967(02)00048-710.1016/S0005-7967(02)00048-7 Google Scholar Search this bibliographic reference on Google Scholar
- O’Connor, K. P. (2005). Cognitive-behavioral management of tic disorders. New York: John Wiley & Sons. doi: 10.1002 /978047071351810.1002/9780470713518 Google Scholar Search this bibliographic reference on Google Scholar
- Ordre des psychologues du Québec et Association québécoise des psychologues scolaires (2007). Guide de pratique des psychologues exerçant en milieu scolaire. Québec, Canada : Ordre des psychologues du Québec.10.1111/j.1469-8749.1998.tb15379.x Google Scholar Search this bibliographic reference on Google Scholar
- Packer, L. E. (2005). Tic-related school problems: Impact on functioning, accommodations, and interventions. Behavior Modification, 29, 876-899. doi: 10.1177/014544550527938310.1177/0145445505279383 Google Scholar Search this bibliographic reference on Google Scholar
- Pappert, E. J., Goetz, C. G., Louis, E. D., Blasucci, L., & Leurgans, S. (2003). Objective assessments of longitudinal outcome in Gilles de la Tourette’s sydrome. Neurology, 61, 936-940.10.1212/01.WNL.0000086370.10186.7C Google Scholar Search this bibliographic reference on Google Scholar
- Peterson, B. S., & Cohen, D. J. (1998). The treatment of Tourette’s syndrome: Multimodal, developmental intervention. Journal of Clinical Psychiatry, 59, 62-72.Google Scholar Search this bibliographic reference on Google Scholar
- Sukhodolsky, D. G., Scahill, L., Zhang, H., Peterson, B. S., King, R. A., Lombroso, P. J., … Leckman, J. F. (2003). Disruptive behaviour in children with Tourette’s syndrome: Association with ADHD comorbidity, tic severity, and functional impairment. Journal of the American Academy of Child and Adolescent Psychiatry, 42, 98-105. doi: 10.1097/00004583-200301000-0001610.1097/00004583-200301000-00016 Google Scholar Search this bibliographic reference on Google Scholar
- Trépanier, N. (2003). L’intégration scolaire des élèves en difficulté. Une typologie de modèles de service. Montréal, Canada : Éditions Nouvelles AMS.Google Scholar Search this bibliographic reference on Google Scholar
- Wang, H. S., & Kuo, M. F. (2003). Tourette syndrome in Taiwan: An epidemiological study of tic disorders in an elementary school at Taipei County. Brain and Development, 25, S29-31. doi : 10.1016/S0387-7604(03)90005-210.1016/S0387-7604(03)90005-2 Google Scholar Search this bibliographic reference on Google Scholar
- Wodrich, D. L., Benjamin, E., & Lachar, D. (1997). Tourette’s syndrome and psychopathology in a child psychiatric setting. Journal of the American Academy of Child and Adolescent Psychiatry, 36, 1618-1624. doi:10.1016/S0890-8567(09)66574-610.1016/S0890-8567(09)66574-6 Google Scholar Search this bibliographic reference on Google Scholar
