Abstracts
Résumé
La pratique d’activités de loisirs chez les enfants ayant une surdité, particulièrement chez ceux qui ont reçu un implant cochléaire, n’a été pour ainsi dire jamais examinée jusqu’ici. En effet, la majorité des études portent sur les enfants ayant des incapacités motrices, un trouble du spectre de l’autisme ou une déficience intellectuelle. Dans cette étude, dix-neuf parents d’enfants porteurs d’implants cochléaires ont participé à des entrevues individuelles visant à comprendre leur expérience reliée à la pratique d’activités de loisirs par leur enfant. Les résultats révèlent que les parents sont généralement favorables à la pratique d’activités de loisirs et estiment que leur enfant y réussit bien. Par contre, près du tiers des parents ont exprimé des craintes face à la pratique de certaines activités, particulièrement celles qu’ils croient être dangereuses pour l’appareil porté par leur enfant. Les résultats font ressortir l’importance de la sensibilisation à la surdité et à l’implant cochléaire dans tous les milieux où se pratiquent les activités de loisirs.
Mots-clés :
- participation sociale,
- loisirs,
- enfants,
- perceptions parentales,
- surdité,
- implant cochléaire
Abstract
To date, the practice of leisure activities among children with a hearing loss, particularly those who have received cochlear implants, has been little studied. The majority of existing studies involve either children with motor disabilities, or intellectual disability/autism spectrum disorder. In this study, nineteen parents of children with cochlear implants participated in individual interviews in which they described their attitudes and actions towards their children in relation to leisure activities. The results show that parents are generally open to the practice of leisure activities. However, almost one-third of the parents expressed concerns about the practice of certain leisure activities. Our results highlight the importance of awareness of deafness and cochlear implants in all settings where leisure activities are practiced.
Keywords:
- parental perceptions,
- children,
- social participation,
- leisure,
- deafness,
- cochlear implants
Appendices
Bibliographie
- Alderman, B. L., Benham-Deal, T. B. et Jenkins, J. M. (2010). Change in parental influence on children’s physical activity over time. Journal of Physical Activity and Health, 7(1), 60-67. doi: https://doi.org/10.1123/jpah.7.1.60
- Anmyr, L., Larsson, K. et Olsson, M. (2016). Parents’ stress and coping related to children's use of a cochlear implant: A qualitative study. Journal of Social Work in Disability & Rehabilitation, 15(2), 150-167. doi: https://doi.org/10.1080/1536710X.2016.1162123
- Archbold, S., Lutman, M. E., Gregory, S., O'Neill, C. et Nikolopoulos, T. P. (2002). Parents and their deaf child: Their perceptions three years after cochlear implantation. Deafness & Education International, 4(1), 12-40. doi: https://doi.org/10.1179/146431502790560962
- Archbold, S., Sach, T., O'Neill, C., Lutman, M. et Gregory, S. (2008). Outcomes from cochlear implantation for child and family: Parental perspectives. Deafness & Education International, 10(3), 120-142. doi: https://doi.org/10.1002/dei.243
- Archbold, S., Sach, T., O'Neill, C., Lutman, M. et Gregory, S. (2006). Deciding to have a cochlear implant and subsequent after-care: Parental perspectives. Deafness & Education International, 8(4), 190-206. doi: https://doi.org/10.1002/dei.201
- Beets, M. W., Cardinal, B. J. et Alderman, B. L. (2010). Parental social support and the physical activity-related behaviors of youth: A review. Health Education & Behavior, 37(5), 621-644. doi: https://doi.org/10.1177/1090198110363884
- Bradham, T. et Jones, J. (2008). Cochlear implant candidacy in the United States: Prevalence in children 12 months to 6 years of age. International Journal of Pediatric Otorhinolaryngology, 72(7), 1023-1028. doi: https://doi.org/10.1016/j.ijporl.2008.03.005
- Bronfenbrenner, U. (1979). The Ecology of Human Development. Harvard University Press.
- Brown, M. et Gordon, W. A. (1987). Impact of impairment on activity patterns of children. Archives of Physical Medicine and Rehabilitation, 68(12), 828-832.
- Calderon, R. et Greenberg, M. T. (1999). Stress and coping in hearing mothers of children with hearing loss: Factors affecting mother and child adjustment. American Annals of the Deaf, 144(1), 7-18. doi: https://doi.org/10.1353/aad.2012.0153
- Carbonneau, H., St-Onge, M, Morier, J., Roult, R., Cantin, R. et Berthiaume, R. (2015). Quebec's recreation intervention model in health care and social services and its implications for the National Council for Therapeutic Recreation Certification's standards. World Leisure Journal, 57(1), 6-18. doi: https://doi.org/10.1080/16078055.2014.1001172
- Carbonneau, H. et Roult, R. (2013). Choisir de Gagner : le défi des saines habitudes de vie pour les jeunes ayant une limitation fonctionnelle. Rapport sur l’étude des facteurs facilitant l’adoption de saines habitudes de vie et la pratique d’activités physiques et sportives par les jeunes ayant une limitation fonctionnelle. Université du Québec à Trois-Rivières. http://bel.uqtr.ca/1915/1/Rapport_FacteursDeterminants_Final.pdf
- Carter, L., Black, D., Bundy, A. et Williams, W. (2016). Parent perceptions of children’s leisure and the risk of damaging noise exposure. Deafness & Education International, 18(2), 87-102. doi: https://doi.org/10.1080/14643154.2015.1136478
- Connor, C. M., Craig, H. K., Raudenbush, S. W., Heavner, K. et Zwolan, T. A. (2006). The age at which young deaf children receive cochlear implants and their vocabulary and speech-production growth: Is there an added value for early implantation? Ear and Hearing, 27(6), 628-644. doi: https://doi.org/10.1097/01.aud.0000240640.59205.42
- Conseil québécois du loisir. (2017). http://www.loisirquebec.com/index.asp?id=983
- Constans, S. et Gardair, E. (2018). Représentations et pratiques des loisirs des enfants et adolescents : le paradoxe de la dimension éducative des loisirs. Bulletin de psychologie, 71/2(554), 563-578. doi: https://doi.org/10.3917/bupsy.554.0563
- Coulibaly, D., De Potter, J.-C., Hagne, S. S., Heinen, G., Royer, D., Kpazai, G., Aleokol Mabieme, J.-M., Ouedraogo, D., Sagna, K. M., Said, L., Ndiaye Diouf, M.-P. et Alla Yao, F. (2012). Guide de formation en activités physiques adaptées. Conférence des ministres de la jeunesse et des sports de la Francophonie (CONFEJES). https://cache.media.education.gouv.fr/file/novembre2016/07/4/guide_formation_activites_physiques_adaptees_mars-2012_673074.pdf
- Cuda, D., Murri, A., Guerzoni, L., Fabrizi, E. et Mariani, V. (2014). Pre-school children have better spoken language when early implanted. International Journal of Pediatric Otorhinolaryngology, 78(8), 1327-1331. doi: https://doi.org/10.1016/j.ijporl.2014.05.021
- Dahan-Oliel, N., Shikako-Thomas, K. et Majnemer, A. (2012). Quality of life and leisure participation in children with neurodevelopmental disabilities: A thematic analysis of the literature. Quality of Life Research, 21(3), 427-439. doi: https://doi.org/10.1007/s11136-011-0063-9
- Demailly, L. et Garnoussi, N. (2015). Le savoir-faire des médiateurs de santé pairs en santé mentale, entre expérience, technique et style. Sciences et actions sociales, 1(1), 1-17.
- Deslauriers, J.-P. (1997). L’induction analytique. Dans J. Poupart, J.-P. Deslauriers, L.-H. Groulx, A. Laperrière, R. Mayer et A. P. Pires (Eds.), La recherche qualitative : enjeux épistémologiques et méthodologiques (p. 293-308). Gaëtan Morin.
- Dettman, S. J., Dowell, R. C., Choo, D., Arnott, W., Abrahams, Y., Davis, A., Dornan, D., Leigh, J., Constantinescu, G., Cowan, R. et Briggs, R. J. (2016). Long-term communication outcomes for children receiving cochlear implants younger than 12 months: A multicenter study. Otology & Neurotology, 37(2), e82-e95. doi: https://doi.org/10.1097/MAO.0000000000000915
- Duchesne, L., Bergeron, F. et Bussières, R. (2012). L'implantation cochléaire chez les enfants au Québec : 25 ans d'expertise. Rééducation orthophonique, 50(252), 139-157.
- Dursun, O. B., Erhan, S. E., Ibis, E. O., Esin, I. S., Keles, S., Sirinkan, A., Yoruk, O., Acar, E. et Beyhun, N. E. (2015). The effect of ice skating on psychological well-being and sleep quality of children with visual or hearing impairment. Disability and Rehabilitation, 37(9), 783–789. doi: https://doi.org/10.3109/09638288.2014.942002
- Eccles, J. S. et Barber, B. L. (1999). Student council, volunteering, basketball, or marching band: What kind of extracurricular involvement matters? Journal of Adolescent Research, 14(1), 10-43. doi: http://dx.doi.org/10.1177/0743558499141003
- Edwardson, C. L. et Gorely, T. (2010). Parental influences on different types and intensities of physical activity in youth: A systematic review. Psychology of Sport and Exercise, 11(6), 522-535. doi: https://doi.org/10.1016/j.psychsport.2010.05.001
- Eriks-Brophy, A., Durieux-Smith, A., Olds, J., Fitzpatrick, E., Duquette, C. et Whittingham, J. (2007). Facilitators and barriers to the integration of orally educated children and youth with hearing loss into their families and communities. Volta Review, 107(1), 5-36.
- Fletcher, A. C., Nickerson, P. et Wright, K. L. (2003). Structured leisure activities in middle childhood: Links to well-being. Journal of Community Psychology, 31(6), 641-659. doi: https://doi.org/10.1002/jcop.10075
- Fougeyrollas, P. (2010). La funambule, le fil et la toile : transformations réciproques du sens du handicap. Les Presses de l’Université Laval.
- Fougeyrollas, P., Cloutier, R., Bergeron, H., Côté, J., Côté, M. et St-Michel, G. (1998). Classification québécoise : Processus de production du handicap. Réseau international sur le processus de production du handicap (RIPPH)/SCCIDIH
- Gallagher, F. (2014). La recherche descriptive interprétative : description des besoins psychosociaux de femmes à la suite d’un résultat anormal à la mammographie de dépistage du cancer du sein. Dans M. Corbière et N. Larivière (Eds.), Méthodes qualitatives, quantitatives et mixtes (p. 5-28). Presses de l’Université du Québec.
- Geers, A. E., Mitchell, C. M., Warner-Czyz, A., Wang, N. Y., Eisenberg, L. S. et Team, C. I. (2017). Early sign language exposure and cochlear implantation benefits. Pediatrics, 140(1), e20163489. doi: https://doi.org/10.1542/peds.2016-3489
- Hintermair, M. (2006). Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. The Journal of Deaf Studies and Deaf Education, 11(4), 493-513. doi: https://doi.org/10.1093/deafed/enl005
- Hintermair, M. (2011). Health-related quality of life and classroom participation of deaf and hard-of-hearing students in general schools. Journal of Deaf Studies and Deaf Education, 16(2), 254-271. doi: https://doi.org/10.1093/deafed/enq045
- Houston, D. M. et Miyamoto, R. T. (2010). Effects of early auditory experience on word learning and speech perception in deaf children with cochlear implants: implications for sensitive periods of language development. Otology & Neurotology, 31(8), 1248-1253. doi: https://doi.org/10.1097/MAO.0b013e3181f1cc6a
- Howie, L. D., Lukacs, S. L., Pastor, P. N., Reuben, C. A. et Mendola, P. (2010). Participation in activities outside of school hours in relation to problem behavior and social skills in middle childhood. 80(3), 119-125. doi: https://doi.org/10.1111/j.1746-1561.2009.00475.x
- Incesulu, A., Vural, M. et Erkam, U. (2003). Children with cochlear implants: Parental perspective. Otology & Neurotology, 24(4), 605-611.
- Jutras, S., Dubuisson, C. et Lepage, G. (2005). Perceptions parentales sur le bien-être psychologique des enfants vivant avec des problèmes auditifs. Laboratoire de recherche sur le bien-être des familles.
- Kindelberger, C., Le Floc’h, N. et Clarisse, R. (2007). Les activités de loisirs des enfants et des adolescents comme milieu de développement. L'orientation scolaire et professionnelle, 36(4), 485-502.
- King, G., Law, M., King, S., Rosenbaum, P., Kertoy, M. K. et Young, N. L. (2003). A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Physical & Occupational Therapy In Pediatrics, 23(1), 63-90.
- Law, M., Haight, M., Milroy, B., Willms, D., Stewart, D. et Rosenbaum, P. (1999). Environmental factors affecting the occupations of children with physical disabilities. Journal of Occupational Science, 6(3), 102-110. doi: https://doi.org/10.1080/14427591.1999.9686455
- Law, M., King, G., King, S., Kertoy, M., Hurley, P., Rosenbaum, P., Young, N. et Hanna, S. (2006). Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Developmental Medicine and Child Neurology, 48(5), 337-342. doi: https://doi.org/10.1017/S0012162206000740
- Letscher, S. (2014). Vignette 3 : Entrevue avec Sylvain Letscher - Intervenir avec des élèves sourds. Dans C. Dugas, M. Point et J.-F. Brunel (Eds.), L’inclusion en éducation physique : Notions théoriques et applications pédagogiques (p. 87-93). Presses de l’Université du Québec.
- Litovsky, R. Y. et Gordon, K. (2016). Bilateral cochlear implants in children: Effects of auditory experience and deprivation on auditory perception. Hearing Research, 338, 76-87. doi: https://doi.org/10.1016/j.heares.2016.01.003
- Looi, V., Gfeller, K. et Driscoll, V. (2012). Music appreciation and training for cochlear implant recipients: A review. Seminars in Hearing, 33(4), 307-334. doi: http://dx.doi.org/10.1055/s-0032-1329222
- Mactavish, J., Schleien, S. et Tabourne, C. (1997). Patterns of family recreation in families that include children with a developmental disability. Journal of Leisure Research, 29(1), 21-46.
- Majnemer, A., Shevell, M., Law, M., Birnbaum, R., Chilingaryan, G., Rosenbaum, P. et Poulin, C. (2008). Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Developmental Medicine & Child Neurology, 50(10), 751-758. doi: https://doi.org/10.1111/j.1469-8749.2008.03068.x
- Marschark, M. (2007). Raising and Educating a Deaf Child: A Comprehensive Guide to the Choices, Controversies, and Decisions Faced by Parents and Educators (2nd ed.). Oxford University Press.
- Mauldin, L. (2019). Don't look at it as a miracle cure: Contested notions of success and failure in family narratives of pediatric cochlear implantation. Social Science & Medicine, 228, 117-125.
- McInnes, J. (1999). A guide to planning and support for individuals who are deaf-blind. University of Toronto Press.
- Murphy, N. A. et Carbone, P. S. (2008). Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics, 121(5), 1057-1061. doi: https://doi.org/10.1542/peds.2008-0566
- Nemček, N. (2017). Self-esteem analyses in people who are deaf or hard of hearing: A comparison between active and inactive individuals. Physical Activity Review, 5, 95-104. doi: https://doi.org/10.16926/par.2017.05.14
- Nicholas, J. G. et Geers, A. E. (2007). Will they catch up? The role of age at cochlear implantation in the spoken language development of children with severe to profound hearing loss. Journal of Speech, Language, and Hearing Research, 50(4), 1048-1062. doi: https://doi.org/10.1044/1092-4388(2007/073)
- Niparko, J. K., Tobey, E. A., Thal, D. J., Eisenberg, L. S., Wang, N. Y., Quittner, A. L., Fink, N. E. et Team, C. I. (2010). Spoken language development in children following cochlear implantation. Journal of the American Medical Association, 303(15), 1498-1506. doi: https://doi.org/10.1001/jama.2010.451
- Organisation mondiale de la santé. (2019). Classification internationale du fonctionnement, du handicap et de la santé : CIF.https://apps.who.int/iris/handle/10665/42418
- Osberger, M. J., Robbins, A. M., Miyamoto, R. T., Berry, S. W., Myres, W. A., Kessler, K. S. et Pope, M. L. (1991). Speech perception abilities of children with cochlear implants, tactile aids, or hearing aids. American Journal of Otolaryngology, 12(Suppl), 105-115.
- Petroff, J. G. (1999). The national transition follow-up study of youth identified as deafblind: Parent perspectives. (NTAC Briefing Paper). The National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind. https://files.eric.ed.gov/fulltext/ED465234.pdf
- Pronovost, G. (2007). L’univers du temps libre et des valeurs chez les jeunes. Presses de l’Université du Québec.
- Raman, G., Lee, J., Chung, M., Gaylor, J. M., Sen, S., Rao, M. et Lau, J. (2011). Effectiveness of cochlear implants in adults with sensorineural hearing loss. Agency for Healthcare Research and Quality. http://www.cms.gov/medicare-coverage-database/details/technology-assessments-details.aspx?TAId=80
- Rimmer, J. H., Riley, B., Wang, E., Rauworth, A. et Jurkowski, J. (2004). Physical activity participation among persons with disabilities: Barriers and facilitators. American Journal of Preventive Medicine, 26(5), 419-425.
- Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23(4), 334-340.
- Sexton, J. (2017). Empowering adolescents who are deaf and hard of hearing. North Carolina Medical Journal, 78(2), 129-130. doi: https://doi.org/10.18043/ncm.78.2.129
- Sherer, M., Maddux, J. E., Mercandante, B., Prentice-Dunn, S., Jacobs, B. et Rogers, R. W. (1982). The self-efficacy scale: Construction and validation. Psychological Reports, 51(2), 663-671.
- Shikako-Thomas, K., Majnemer, A., Law, M. et L., L. (2008). Determinants of participation in leisure activities in children and youth with cerebral palsy: systematic review. Physical and Occupational Therapy in Pediatrics, 28(2), 155-169.
- Solish, A., Perry, A. et Minnes, P. (2010). Participation of children with and without disabilities in social, recreational and leisure activities. Journal of Applied Research in Intellectual Disabilities, 23(3), 226-236. doi: https://doi.org/10.1111/j.1468-3148.2009.00525.x
- Stern, R. E., Yueh, B., Lewis, C., Norton, S. et Sie, K. C. (2005). Recent epidemiology of pediatric cochlear implantation in the United States: Disparity among children of different ethnicity and socioeconomic status. Laryngoscope, 115(1), 125-131.
- Stewart, D. A. et Ellis, M. K. (2005). Sports and the deaf child. American Annals of the Deaf, 150(1), 59-66.
- Stewart, D. A. et Stinson, M. S. (1992). The role ofsport and extracurricular activities in shaping socializa-tion patterns. Dans T. N. Kluwin, D. F. Moores et M. Gonter Gaustad (Eds.), Toward effective public schoolprograms for deaf students (p. 129-148). Teachers College Press.
- Tobey, E. A., Thal, D., Niparko, J. K., Eisenberg, L. S., Quittner, A. L., Wang, N. Y. et Team, C. I. (2013). Influence of implantation age on school-age language performance in pediatric cochlear implant users. International Journal of Audiology, 52(4), 219-229. doi: https://doi.org/10.3109/14992027.2012.759666
- Warner-Czyz, A. D., Loy, B., Roland, P. S. et Tobey, E. A. (2013). A comparative study of psychosocial development in children who receive cochlear implants. Cochlear Implants International, 14(5), 266-275.