Abstracts
Résumé
Quinze proches aidants d’une personne traversant un premier épisode de trouble dépressif caractérisé ont pris part à une entrevue semi-structurée visant à décrire les défis, les aspects positifs et les besoins découlant de leur accompagnement. Presque tous les participants ont identifié des aspects positifs et négatifs à leur expérience. Certains proches font preuve d’idées préconçues ou erronées qui peuvent avoir des répercussions sur la relation ou le processus de rétablissement. Plusieurs proches auraient souhaité avoir du soutien de professionnels pour les aider à composer avec la situation. Des efforts additionnels doivent être investis afin de mieux comprendre leur réalité.
Mots-clés :
- dépression,
- proche aidant,
- défis,
- besoins,
- expérience positive
Abstract
Fifteen caregivers of someone going through a first episode of major depression took part in a semi-structured interview designed to describe the needs, challenges and positive aspects of their experience. Almost all of the participants identified positive and negative aspects to their experience. Some caregivers have misconceptions that can impact the relationship or the recovery process. Several caregivers would have liked to have professional support to help them cope with the situation. Additional efforts must be invested in order to better understand their reality.
Keywords:
- depression,
- caregiver,
- carer,
- needs,
- challenges,
- positive experience
Appendices
Bibliographie
- Bagby, R. M., Ryder, A. G., Cristi, C. et Cristi, B. (2002). Psychosocial and clinical predictors of response to pharmacotherapy for depression. Journal of Psychiatry and Neurosciences, 27(4), 250-257.
- Baraldi, R., Joubert, K. et Bordeleau, M. (2015). Portrait statistique de la santé mentale des Québécois. Résultats de l’Enquête sur la santé dans les collectivités canadiennes – Santé mentale 2012. Institut de la statistique du Québec.
- Bauer, R., Sterzinger, L., Koepke, F. et Spiessl, H. (2013). Rewards of caregiving and coping strategies of caregivers of patients with mental illness. Psychiatric Services, (64)2, 185-188.
- Bergeron-Leclerc, C., Morin. M-H., Dallaire, B. et Cormier. C.. (2019). La pratique du travail social en santé mentale : Apprendre, comprendre, s’engager. Presse de l’Université du Québec.
- Braun, V. et Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, (3)2, 77-101.
- Brockington, I. F., Hall, P., Levings, J. et Murphy, C. (1993). The community’s tolerance of the mentally Ill. British Journal of Psychiatry, 162, 93-99.
- Cleary, M., Freeman, A. H. et Garry, W. (2006). Patient and carer perceptions of need and associations with care-giving bruden in an integrated adult mental health service. Social Psychiatry and Psychitric Epidemiology, 41, 208-241.
- Corrigan, P. (2004). How stigma interferes with mental health care. American Psychologist Journal, 59(7), 614-625.
- Corrigan, P. W., Edwards, A. B., Green, A., Diwan, S. L. et Penn, D. L. (2001). Prejudice, social distance, and familiarity with mental illness. Schizophrenia Bulletin, 27, 219-225.
- Corrigan, P. W., Green, A., Lundin, R., Kubiak, M. A. et Penn, D. L. (2001). Familiarity with and social distance from people who have serious mental illness. Psychiatric Services, 52(7), 953-958.
- Couture, S. M. et Penn, D. L. (2003). Interpersonal contact and the stigma of mental illness: A review of the literature. Journal of Mental Health, 12(3), 291-305.
- Dalton, J. H., Elias, M. J. et Wandersman, A. (2007). Community psychology: Linking individuals and communities (2e éd.). Thomson Wadsworth.
- Farina, A. (1998). Stigma. Dans K. T. Mueser et N. Tarrier (dir.), Handbook of social functioning in schizophrenia (p. 247-249). Allyn & Bacon.
- Fernando, S. M., Deane, F. P. et McLeod, H. J. (2017). The delaying effect of stigma on mental health help‐seeking in Sri Lanka. Asia-Pacific Psychiatry, 9(1), 1-7.
- Girma, E., Möller-Leimkühler, A. M., Dehning, S., Mueller, N., Tesfaye, M., et Froeschl, G. (2014). Self-stigma among caregivers of people with mental illness: toward caregivers' empowerment. Journal of Multidisciplinary Healthcare, 7, 37-43.
- González, L. A. M., Romero, Y. M. P., López, M. R., Ramírez, M. et Stefanelli, M. C. (2010). The experience of family caregivers of older people with depression. Journal of School and Nursing, 44(1), 32-39.
- Henriksson, A., Carlander, I. et Årestedt, K. (2015). Feelings of rewards among family caregivers during ongoing palliative care. Palliative & Supportive Care, 13(6), 1509-1517.
- Heru, M. A. et Ryan, C. E. (2004). Burden, reward and family functioning of caregivers for relatives with mood disorders: 1-year follow-up. Journal of Affective Disorder, 83(2-3), 221-225.
- Highet, N. J., McNair, B. G., Davenport, T. A. et Hickie, Y. B. (2004). How much more can we lose?": Carer and family perspectives on living with a person with depression. The Medical Journal of Australia, 181(S7), S6-9.
- Hoenig, J. et Hamilton, M. W. (1967). The burden on the household in an extramural psychiatric service. Dans H. Freedman et J. Farndale (dir.), New aspects of the mental health services (p. 612-635). Pergamon.
- Hoenig, J. et Hamilton, M. W. (1966). The schizophrenic patient and his effect on the household. International Journal of Social Psychiatry, 12, 165-176.
- Holmes, P. E. et River, L. P. (1998). Individual strategies for coping with the stigma of severe mental illness. Cognitive and Behavioral Practice, 5(2), 231-239.
- Houle, J., Villaggi, B., Beaulieu, S., Lespérance, F., Rondeau, G. et Lambert, J. (2013). Treatment preferences in patients with first episode depression. Journal of Affective Disorders, 147, 94-100.
- Lazarus, R. S. et Folkman, S. (1984). Stress, appraisal and coping. Springer Publishing Company Inc.
- MacCourt, P., Comité consultatif sur les aidants membres de la famille et Commission de la santé mentale du Canada (2013). Directives pancanadiennes en faveur d’un système de prestation de services pour les proches aidants d’adultes ayant une maladie mentale. Commission de la santé mentale du Canada.
- Menear, M., Gervais, M., Careau, E., Chouinard, M. C., Cloutier, G., Delorme, A., Dogba, M. J., Dugas, M., Gagnon, M., P., Gilbert, M., Harvey, D., Houle, J., Kates, N, Knowles, S., Martin, N., Nease, D. Jr., Pluye, P., Samson, E., Zomahoun, H., T. et Légaré, F. (2016). Strategies and impacts of patient and family engagement in collaborative mental healthcare: Protocol or a systematic and realist review. BMJ Open,6(9), 1-9.
- Miles, B. M. et Huberman, M. (2003). Analyse des données qualitatives (2e éd.). Édition de Boeck.
- Möller-Leimkühler, A. M. (2006). Multivariate prediction of relatives’ stress outcome one year after first hospitalization of schizophrenic and depressed patients. European Archives of Psychiatry and Clinical Neuroscience, 256(2), 122-130.
- Morin, M.-H. et St-Onge, M. (2016). La collaboration entre les parents et les travailleuses sociales oeuvrant dans une clinique spécialisée pour les premières psychoses : une voie prometteuse pour établir un réel partenariat. Revue canadienne de service social, 33(2), 229-254.
- National Institute for Health and Care Excellence (2009). Depression in adults: Recognition and management.
- Ong, H. C., Ibrahim, N. et Wahab, S. (2016). Psychological distress, perceived stigma, and coping among caregivers of patients with schizophrenia. Psychology Research and Behavior Management, 9, 211–218.
- Paillé, P. et Mucchielli, A. (2010). L’analyse qualitative en science-humaines et sociales. Édition Armand Colin.
- Parikh, S. V., Quilty, L. C., Ravitz, P., Rosenbluth, M., Pavlova, B., Grigoriadis, S., Velyvis, V., Kennedy S. H., Lam, R. W., MacQueen, G. M., Milev, R. V., Ravindran, A. V., Uher, R. Depression Work Group. Canadian Network for Mood and Anxiety Treatments (CANMAT). (2016). Clinical guidelines for the management of adults with major depressive disorder: Section 2. psychological treatments. Canadian Journal of Psychiatry, 61(9), 534-539.
- Park, C. L. (2013). The meaning making model: a framework for understanding meaning, spirituality, and stress related growth in health psychology. European Health in Psychology, 15, 40-47.
- Patten, S. B., Williams, J. V. A., Lavorato, D. H., Fiest, K. M., Bulloch, G. M. A. et Wang, J. L. (2015). The prevalence of major depression is not changing. The Canadian Journal of Psychiatry, 60(1), 31-34.
- Patten, S. B., Williams, J. V., Lavorato, D. H., Bulloch, A. G. M., Charbonneau, M., Gautam, M., Moss. P., Abbey, S. et Stuart. H. (2016). Perceived stigma among recipients of mental health care in the general canadian population. Canadian Journal of Psychiatry, 61(8), 480-488, version corrigée 61(10), 772.
- Patton, M. Q. (1990). Qualitative evaluation and research methods (4e éd.). Sage Publications, Inc.
- Priestley, J. et McPherson, S. (2016). Experiences of adults providing care to a partner or relative with depression: A meta-ethnographic synthesis. Journal of Affective Disorders, 192, 41-49.
- Provencher, H. (2013). L’expérience de rétablissement : vers la santé mentale complète. Faculté des sciences infirmières de l’Université Laval.
- Santé Canada. (2002). Profil national des personnes soignantes au Canada : Rapport final. Novembre 2012. https://www.canada.ca/fr/sante-canada/services/systeme-soins-sante/rapports-publications/soins-domicile-continus/profil-national-personnes-soignantes-canada-2002-rapport-final.html
- Statistique Canada (2013). Enquête sur la santé dans les collectivités canadiennes – Santé mentale (ESCC).http://www23.statcan.gc.ca/imdb/p2SV_f.pl?Function=getSurvey&SDDS=5015 (le lien est externe)
- Schene, A. H., Tessler, R. et Gamache, G. (1994). Instruments measuring family or caregiver burden in severe mental illness. Social Psychiatry and Psychiatric Epidemiology, 29, 228-240.
- Schulze, B. et Rössler, W. (2005). Caregiver burden in mental illness: review of measurement, findings and interventions in 2004-2005. Current Opinion in Psychiatry, 18(6), 684-691.
- Simon, G. E., Fleck, M. F., Lucas, R., Bushnell, D. M. et LIDO Group. (2004). Prevalence and predictors of depression treatment in an international primary care study. American Journal of Psychiatry, 161, 1626-1634.
- Slaunwhite, K. A., Ronis, T. S., Sun, Y. et Peters, P. A. (2017). The emotional health and well-being of canadians who care for persons with mental health or addictions problems. Health and Social Care, 25(3), 840-847.
- Van Den Brink, R. H. S., Schutter, N., Hanssen, D. J. C., Elzinga, B. M., Rabeling-Keus, I. M., Stek, M. L., Comijs, H. C., Penninx, B. W. J. H. et Oude Voshaar, R. C. (2018). Prognostic significance of social network, social support and loneliness for course of major depressive disorder in adulthood and old age. Epidemiology and Psychiatric Sciences, 27(3), 266-277.
- Van Wijngaarden, B., Schene, A. H., et Koeter, M. W. J. (2004). Family caregiving in depression: impact on caregivers’s daily life, distress, and help seeking. Journal of Affective Disorders, 81, 211-222.
- Veltman, A., Cameron, I. J. et Stewart, E. D. (2002). The experience of providing care to relatives with chronic mental illness. The Journal of Nervous and Mental Disease, 190(2), 108-114.
- Wahl, O. F. (1999). Mental health consumers’ experience of stigma. Schizophrenia Bulletin, 25(3), 467-478.
- Yu, S., Doris, S. F., Cheng, S-T. et Wang, J. (2018). Unravelling positive aspects of caregiving in dementia: An integrative review of research literature. International Journal of Nursing Studies, 79, 1-26.
10.7202/1038700ar