Abstracts
Abstract
Introduction: Rehabilitation is a health care service focusing on the restoration and maintenance of function and is often undertaken by interdisciplinary teams. Rehabilitation care providers encounter ethical issues and concerns that require attention and resolution. Clinical ethics services (CES) provided by ethics consultants aim to support teams facing ethical challenges. The objective of this study was to explore the experiences and perspectives of individuals providing CES to interdisciplinary rehabilitation teams in Quebec health care centres.
Methods: We conducted a qualitative descriptive study and interviewed individuals who provide CES in all 22 integrated health care centres in the province of Quebec. Interview transcripts were examined using constant comparative techniques and inductive thematic analysis.
Results: Rehabilitation teams requested CES to address a range of issues, from conflicts between upholding patient autonomy and promoting safety to challenges arising due to structural gaps in care trajectories. However, ethics requests from rehabilitation teams were described as much less frequent than those received from teams working in acute care settings. Forms of CES provided to rehabilitation teams included accompaniment, ethical deliberation and mediation. Participants highlighted challenges providing ethics support, such as limited visibility of their services amongst rehabilitation teams and insufficient resources available to extend the reach of CES.
Conclusion: Despite encountering challenges, ethics consultants offer diverse forms of support to interdisciplinary rehabilitation teams in Quebec. Further research is needed to better understand the range of ethical issues arising in rehabilitation, as well as the impact that CES support can have on how situations unfold and how they are experienced by all involved.
Keywords:
- clinical ethics services,
- rehabilitation,
- support,
- ethical challenges,
- interviews
Résumé
Introduction : La réadaptation est un service de santé axé sur le rétablissement et le maintien de la fonction et souvent entrepris par des équipes interdisciplinaires. Les prestataires de services de réadaptation sont confrontés à des questions et préoccupations éthiques qui requièrent une attention et une résolution. Les services d’éthique clinique (SEC) fournis par des consultants en éthique visent à soutenir les équipes confrontées à des défis éthiques. L’objectif de cette étude était d’explorer les expériences et les perspectives des personnes qui fournissent des SEC aux équipes interdisciplinaires de réadaptation dans les centres intégrés de santé et services sociaux du Québec.
Méthodes : Nous avons mené une étude qualitative descriptive et interrogé des personnes qui fournissent des SEC dans les 22 centres intégrés de la province de Québec. Les transcriptions des entrevues ont été examinées à l’aide de techniques de comparaison constante et d’une analyse thématique inductive.
Résultats : Les équipes de réadaptation ont demandé des SEC pour résoudre un éventail de problèmes, allant des conflits entre le maintien de l’autonomie et la sécurité du patient aux défis découlant des lacunes structurelles dans les trajectoires de soins. Cependant, les demandes aux SEC par les équipes de réadaptation ont été décrites comme étant beaucoup moins fréquentes que celles des équipes travaillant dans des établissements de soins aigus. Les formes de SEC fournies aux équipes de réadaptation comprenaient l’accompagnement, la délibération éthique et la médiation. Les participants ont souligné les difficultés rencontrées pour apporter un soutien éthique, notamment la visibilité limitée de leurs services au sein des équipes de réadaptation et l’insuffisance des ressources disponibles pour étendre la portée de leurs services.
Conclusion : Malgré les défis qu’ils rencontrent, les consultants en éthique offrent diverses formes de soutien aux équipes interdisciplinaires de réadaptation au Québec. D’autres recherches sont nécessaires pour mieux comprendre l’éventail des questions éthiques qui se posent en réadaptation, ainsi que l’impact que le soutien des SEC peut avoir sur le déroulement des situations éthiques et sur la façon dont elles sont vécues par toutes les personnes concernées.
Mots-clés :
- services d’éthique clinique,
- réadaptation,
- soutien,
- enjeux éthiques,
- entrevues
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Appendices
Remerciements / Acknowledgements
Nous tenons à remercier les participants pour le temps qu’ils nous ont consacré et pour avoir partagé avec nous leurs expériences et leurs points de vue. JD a bénéficié d’une bourse de stage doctoral du Réseau provincial de recherche en adaptation-réadaptation (REPAR) et a également reçu un financement du Fonds de recherche du Québec Santé (FRQS) et de Mitacs pendant son stage postdoctoral. AH est une chercheuse boursière du Fonds de recherche du Québec Santé.
We would like to thank the participants for their time and for sharing their experiences and perspectives with us. JD was funded by a doctoral internship grant from the Réseau provincial de recherche en adaptation-réadaptation (REPAR) and also received funding from the Fonds de recherche du Québec Santé (FRQS) and Mitacs during his postdoctoral fellowship. AH is a Fonds de recherche du Québec Santé Research Scholar.
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