Abstracts
Résumé
La schizophrénie est associée à des troubles du fonctionnement mnésique et exécutif qui altèrent la capacité des patients à organiser leurs Activités de la Vie Quotidienne (AVQ). Afin d’améliorer leur autonomie et d’alléger la charge de leurs aidants, nous proposons de programmer des organiseurs en fonction des besoins spécifiques de chaque patient. Ces agendas électroniques permettent de rappeler au patient ses AVQ, et d’augmenter la communication avec l’aidant. Cette étude de convivialité vérifie que l’organiseur pressenti est fonctionnel. Malgré les problèmes techniques rencontrés, tous les participants ont été séduits par l’utilisation des organiseurs. Les aidants ont été convaincus que ces outils amélioreraient la qualité de vie des patients et constitueraient un complément de travail précieux. Les agendas seront améliorés d’après les commentaires des participants et testés dans une étude ultérieure.
Abstract
Mnesic and executive troubles elicited by schizophrenia decrease patient’s capacity to organise their Daily Living Activities (DLA). According to the needs of each patient, PDA (Personal Digital Assistant) were programmed in order to improve their autonomy and to reduce the load of their carers and relatives. These electronic diaries recall patient’s DLA and increase communication with carer. This conviviality study aims at verify that the material is operational. Despite some technical problems, all participants reported a great interest for the use of these diaries. Carers were convinced that these tools would represent an invaluable complement of work, and would improve the quality of life of their patients by bringing them more autonomy. According to the participants reports, PDA will be enhanced and tested in a subsequent study.
Resumen
La esquizofrenia está asociada a los trastornos del funcionamiento mnésico y de ejecución que alteran la capacidad de los pacientes para organizar sus Actividades de la Vida Cotidiana (AVQ). A fin de mejorar su autonomía y de aligerar la carga de sus ayudantes, proponemos programar los organizadores en función de las necesidades específicas de cada paciente. Estas agendas electrónicas permiten al paciente recordar sus AVQ y aumentar la comunicación con el ayudante. Este estudio de la facilidad de uso verifica que el organizador potencial sea funcional. A pesar de los problemas técnicos encontrados, todos los participantes fueron seducidos por el uso de los organizadores. Los ayudantes se convencieron de que estas herramientas mejoran la calidad de vida de los pacientes y constituirían un complemento de trabajo precioso. Las agendas serán mejoradas conforme a los comentarios de los participantes y se probarán en un estudio posterior.
Resumo
A esquizofrenia é associada a transtornos do funcionamento mnésico e executivo que alteram a capacidade dos pacientes em organizar suas Atividades da Vida Cotidiana (Activités de la Vie Quotidienne – AVQ). A fim de melhorar sua autonomia e tornar mais leve a carga de seus auxiliares, propomos programar agendas eletrônicas em função das necessidades específicas de cada paciente. Estes aparelhos permitem lembrar ao paciente suas AVQ, e aumentar a comunicação com o auxiliar. Este estudo de convivialidade verifica se a agenda pressentida é funcional. Apesar dos problemas técnicos que ocorreram, todos os participantes ficaram seduzidos pela utilização das agendas eletrônicas. Os auxiliares ficaram convencidos de que estas ferramentas melhoraram a qualidade de vida dos pacientes e constituiriam um complemento de trabalho precioso. As agendas serão modificadas, segundo os comentários dos participantes, e testadas em um estudo futuro.
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Appendices
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