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32.More information
Children's support for a disabled parent has not been extensively explored within disability studies. Children are typically viewed as young and immature beings in need of protection, in contrast to the sociology of ageing which focuses on adult caregivers of elderly parents. The article is based on research into the parenting experiences of blind people who, in order to fulfil various parental caregiving tasks, engage in emotional, physical, temporal, and relational work to attain autonomy. The article notably highlights the tensions between the status of parent, as caregiver, and that of the disabled person, as dependant, with the help of children serving as a prominent illustration. The article examines how blind parents experience their day-to-day dependence – acknowledging its existence – on their able-bodied children, who are in principle capable of helping them, and how they navigate this functional asymmetry, which is reversed in relation to the generational and age asymmetry. The methodology involved qualitative interviews with 33 blind parents, online discussions in closed groups dedicated to blind parenting, eight months' observations in a parenting support service for disabled people, and finally, my own experience as a blind mother.
Keywords: parentalité, handicap, aide des enfants, moralité ordinaire, parenting, disability, children's help, day-to-day common sense /ordinary moralities
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Since 2005, the Service québécois du livre adapté (SQLA) has been offering a free collection of documents in Braille, DAISY audio and other adapted formats for the perceptually impaired. This article presents a brief history of these services, as well as the various players involved in adapted and accessible documents.
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Using a feminist poststructuralist approach, we explore the discursive constructions of health of 20 young women living with a visual impairment in the current context of a dominant obesity discourse. First, we use creative writing to report results from our thematic analysis. The latter allow us to highlight two emerging results: health is mostly constructed in bodily terms and as a matter of personal responsibility via the adoption of health practices. Second, a poststructuralist discourse analysis method is used to investigate the young women's narratives. As a result of this analysis, we note the multiple and fluid subject positions adopted by the young women: at times, as “neoliberal” subjects (re)producing elements of dominant health and obesity discourses and, at other times, as poststructuralist subjects critically gazing at dominant social discourses, offering some forms of “micro-resistance”, and discursively reconstituting health in a less oppressive way.
Keywords: construction, discursive, santé, obésité, jeunes femmes, aveugle
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Le Service spécialisé en déficience visuelle dessert 457 patients atteints de basse vision. Le centre est unique au Saguenay-Lac-St-Jean?Chibougamau-Chapais. La clientèle qui le fréquente est diversifiée et peut recevoir des services subventionnés à cet endroit. Une centaine de pathologies oculaires différentes et plusieurs pathologies systémiques y sont rencontrées. Plus de 50% des pathologies oculaires rencontrées chez la clientèle âgée de moins de 21 ans sont de causes héréditaires ou congénitales. Les coefficients moyens de consanguinité et d'apparentement calculés grâce à la reconstitution des généalogies donnent des résultats qui, pour certaines pathologies, se démarquent des valeurs moyennes retrouvées au Saguenay-Lac-Saint-Jean. Aucune pathologie oculaire parmi celles étudiées au centre de basse vision n'a une prévalence plus élevée dans la région du Saguenay-Lac-Saint-Jean qu'ailleurs dans la province. La …